HELPING GIRLS WITH TURNER'S SYNDROME ACHIEVE THEIR FULL POTENTAL
Our Objective
Our mission is to help as many girls with Turner’s Syndrome as possible by linking them to the support they need.
Whilst there is some help out their for parents there is very little for the rest of the family. Speaking to STV news in 2015, Tracey Connelly stated, “I was diagnosed with Turner’s Syndrome as an infant and although the doctors were there every step of the way, as I got older I realised that no one had asked any of my three brothers how they felt. There was no real support or information available to them to help them understand the condition. Ragdolls UK was set up to be inclusive of everyone who feels they could use a friendly ear.”
Our mission is to help as many girls with Turner’s Syndrome as possible by linking them to the support they need.
Whilst there is some help out their for parents there is very little for the rest of the family. Speaking to STV news in 2015, Tracey Connelly stated, “I was diagnosed with Turner’s Syndrome as an infant and although the doctors were there every step of the way, as I got older I realised that no one had asked any of my three brothers how they felt. There was no real support or information available to them to help them understand the condition. Ragdolls UK was set up to be inclusive of everyone who feels they could use a friendly ear.”
Our mission is to help as many girls with Turner’s Syndrome as possible by linking them to the support they need.
Whilst there is some help out their for parents there is very little for the rest of the family. Speaking to STV news in 2015, Tracey Connelly stated, “I was diagnosed with Turner’s Syndrome as an infant and although the doctors were there every step of the way, as I got older I realised that no one had asked any of my three brothers how they felt. There was no real support or information available to them to help them understand the condition. Ragdolls UK was set up to be inclusive of everyone who feels they could use a friendly ear.”
Coming Events
If you would like to organise an event on behalf of Ragdolls UK we would love to offer whatever help you need.
Contact ragdolls.uk@gmail.com for more information.
We are our own normal by Nicole Hawley
Growing up, I had so many questions about myself. From as early as I could remember, I knew I was different, but couldn’t articulate why and my parents wouldn’t talk to me about it. If even they couldn’t say the truth about myself out loud, I felt that it must be pretty bad and shameful. I internalized those things and believed them. The message I got was I needed to figure out how to deal with these things out on my own- I couldn’t ask anyone about them or reveal what made me different.
Turner's Syndrome and Reproductive Decisions; by Kriss Fearnon
My name is Kriss Fearon and I’m based at the Centre for Reproduction Research at De Montfort University in Leicester. My research is about reproductive decision making in the context of Turner Syndrome. I’m talking to women with TS about how they decide how to have a family. I’m also talking to mums of girls with TS about how they make decisions that could affect their daughter, such as whether to freeze their own eggs for their daughter to use in later life.
